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The Resource The Investigating Meaning/Purpose and Connectedness (IMPACT) Study : A Comparative Case Study of Parents of Adult Children with Schizophrenia, by Michelle Madeleine Clark

The Investigating Meaning/Purpose and Connectedness (IMPACT) Study : A Comparative Case Study of Parents of Adult Children with Schizophrenia, by Michelle Madeleine Clark

Creator
Author
Contributor
Summary
Schizophrenia is a chronic and disabling disease that causes significant stress for a family from the time of onset throughout the individual's life. For families with members who live with schizophrenia, spirituality can be a source of support and help caregivers manage stress. While holistic nursing care of patients and families with schizophrenia includes addressing spiritual needs, spirituality is often not incorporated into nursing care due to a lack of understanding and confidence of nurses. There has been little research to understand the spiritual needs of parent caregivers of adult children with schizophrenia. The purpose of this comparative case study was to answer the question: "How do parent caregivers of adult children with schizophrenia renegotiate their spirituality, defined as life meaning/purpose and connectedness, in the years following the onset of the illness?" A comparative case study approach was used. Participants were recruited from the National Alliance on Mental Illness (NAMI) in Northeast Ohio and social media. Snowball sampling was also used to recruit participants. Eligibility criteria included the ability to speak and understand English, having an adult child with schizophrenia, and consenting to be interviewed via Zoom videoconferencing technology on a phone or computer. Three in-depth interviews were conducted with six participants, and artifacts were documented. Cases were analyzed individually using thematic analysis and across cases to identify similarities and differences. Three persons were interviewed, all white women between the ages of 57 and 73. When one participant was unable to complete the interview series, another was recruited. Primary themes from the interviews were conflict/peace, disconnectedness/connectedness, real/ideal, and despair/hope. Ancillary themes were related to the participants' personal values and beliefs and included the role of mother/parent/provider and personal religious beliefs. This study provided a deeper understanding of the process of renegotiating spirituality that can inform future nursing research exploring best ways to support for families with children who live with schizophrenia. This better understanding of family processes and needs can inform development of family-targeted, nurse-led programs to provide more individualized and holistic care to families
Language
eng
Work
Publication
Extent
1 online resource (204 pages)
Note
  • "A dissertation in Nursing."
  • Advisor: Amanda Emerson
  • Vita
Contents
  • Introduction
  • Review of literature and theoretical framework
  • Methods
  • Results
  • Discussion
  • Appendix A. Recruitment flyer
  • Appendix B. Internet recruitment flyer
  • Appendix C. Recruitment sources
  • Appendix D. Demographic sheet
  • Appendix E. Initial telephone call script
  • Appendix F. Interview guides
  • Appendix G. Observation form
  • Appendix H. Preliminary code list
  • Appendix I. IMPACT study consent form
  • Appendix J. Images of memory objects
Instance
Label
The Investigating Meaning/Purpose and Connectedness (IMPACT) Study : A Comparative Case Study of Parents of Adult Children with Schizophrenia
Title
The Investigating Meaning/Purpose and Connectedness (IMPACT) Study
Title remainder
A Comparative Case Study of Parents of Adult Children with Schizophrenia
Statement of responsibility
by Michelle Madeleine Clark
Title variation
Comparative Case Study of Parents of Adult Children with Schizophrenia
Creator
Contributor
Author
Degree supervisor
Subject
Genre
Language
eng
Summary
Schizophrenia is a chronic and disabling disease that causes significant stress for a family from the time of onset throughout the individual's life. For families with members who live with schizophrenia, spirituality can be a source of support and help caregivers manage stress. While holistic nursing care of patients and families with schizophrenia includes addressing spiritual needs, spirituality is often not incorporated into nursing care due to a lack of understanding and confidence of nurses. There has been little research to understand the spiritual needs of parent caregivers of adult children with schizophrenia. The purpose of this comparative case study was to answer the question: "How do parent caregivers of adult children with schizophrenia renegotiate their spirituality, defined as life meaning/purpose and connectedness, in the years following the onset of the illness?" A comparative case study approach was used. Participants were recruited from the National Alliance on Mental Illness (NAMI) in Northeast Ohio and social media. Snowball sampling was also used to recruit participants. Eligibility criteria included the ability to speak and understand English, having an adult child with schizophrenia, and consenting to be interviewed via Zoom videoconferencing technology on a phone or computer. Three in-depth interviews were conducted with six participants, and artifacts were documented. Cases were analyzed individually using thematic analysis and across cases to identify similarities and differences. Three persons were interviewed, all white women between the ages of 57 and 73. When one participant was unable to complete the interview series, another was recruited. Primary themes from the interviews were conflict/peace, disconnectedness/connectedness, real/ideal, and despair/hope. Ancillary themes were related to the participants' personal values and beliefs and included the role of mother/parent/provider and personal religious beliefs. This study provided a deeper understanding of the process of renegotiating spirituality that can inform future nursing research exploring best ways to support for families with children who live with schizophrenia. This better understanding of family processes and needs can inform development of family-targeted, nurse-led programs to provide more individualized and holistic care to families
Cataloging source
UMK
http://library.link/vocab/creatorDate
1981-
http://library.link/vocab/creatorName
Clark, Michelle Madeleine
Degree
Ph.D.
Dissertation note
(School of Nursing and Health Studies).
Dissertation year
2020.
Granting institution
University of Missouri-Kansas City,
Illustrations
illustrations
Index
no index present
Literary form
non fiction
Nature of contents
  • dictionaries
  • bibliography
  • theses
http://library.link/vocab/relatedWorkOrContributorDate
1969-
http://library.link/vocab/relatedWorkOrContributorName
Emerson, Amanda Marie
http://library.link/vocab/subjectName
  • Parents of children with mental disabilities
  • Adult children
  • Schizophrenics
  • Schizophrenia
Label
The Investigating Meaning/Purpose and Connectedness (IMPACT) Study : A Comparative Case Study of Parents of Adult Children with Schizophrenia, by Michelle Madeleine Clark
Instantiates
Publication
Copyright
Note
  • "A dissertation in Nursing."
  • Advisor: Amanda Emerson
  • Vita
Antecedent source
not applicable
Bibliography note
Includes bibliographical references (pages 156-174)
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
black and white
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Introduction -- Review of literature and theoretical framework -- Methods -- Results -- Discussion -- Appendix A. Recruitment flyer -- Appendix B. Internet recruitment flyer -- Appendix C. Recruitment sources -- Appendix D. Demographic sheet -- Appendix E. Initial telephone call script -- Appendix F. Interview guides -- Appendix G. Observation form -- Appendix H. Preliminary code list -- Appendix I. IMPACT study consent form -- Appendix J. Images of memory objects
Control code
1155440538
Dimensions
unknown
Extent
1 online resource (204 pages)
File format
one file format
Form of item
online
Level of compression
mixed
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other physical details
illustrations.
Quality assurance targets
not applicable
Specific material designation
remote
System control number
(OCoLC)1155440538
System details
  • The full text of the dissertation is available as an Adobe Acrobat .pdf file; Adobe Acrobat Reader required to view the file
  • Mode of access: World Wide Web
Label
The Investigating Meaning/Purpose and Connectedness (IMPACT) Study : A Comparative Case Study of Parents of Adult Children with Schizophrenia, by Michelle Madeleine Clark
Publication
Copyright
Note
  • "A dissertation in Nursing."
  • Advisor: Amanda Emerson
  • Vita
Antecedent source
not applicable
Bibliography note
Includes bibliographical references (pages 156-174)
Carrier category
online resource
Carrier category code
  • cr
Carrier MARC source
rdacarrier
Color
black and white
Content category
text
Content type code
  • txt
Content type MARC source
rdacontent
Contents
Introduction -- Review of literature and theoretical framework -- Methods -- Results -- Discussion -- Appendix A. Recruitment flyer -- Appendix B. Internet recruitment flyer -- Appendix C. Recruitment sources -- Appendix D. Demographic sheet -- Appendix E. Initial telephone call script -- Appendix F. Interview guides -- Appendix G. Observation form -- Appendix H. Preliminary code list -- Appendix I. IMPACT study consent form -- Appendix J. Images of memory objects
Control code
1155440538
Dimensions
unknown
Extent
1 online resource (204 pages)
File format
one file format
Form of item
online
Level of compression
mixed
Media category
computer
Media MARC source
rdamedia
Media type code
  • c
Other physical details
illustrations.
Quality assurance targets
not applicable
Specific material designation
remote
System control number
(OCoLC)1155440538
System details
  • The full text of the dissertation is available as an Adobe Acrobat .pdf file; Adobe Acrobat Reader required to view the file
  • Mode of access: World Wide Web

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